Variety – the Children’s Charity NSW has helped 10 year old Erin of Smithfield reclaim her confidence and self-esteem, by providing a specialised wig for the young girl, who lives with alopecia.
Alopecia is an autoimmune disease that affects hair growth on the scalp and entire body which results in minor or complete hair loss with slim chances of regrowth, for which there is no cure.
There is no one else in the world quite like four-year-old Eva Pym.
Two weeks after Eva’s birth, genetic testing indicated she has a rare chromosomal deletion disorder; she is the only known child in the world with this particular deletion.
The chromosomal disorder means Eva has severe movement and mobility delays and development and language delays.
Despite having Duchenne Muscular Dystrophy and no longer able to walk, 16 year old Brandon Stroud from Canberra is embracing life.
Brandon is getting out and about at every opportunity thanks to the generous help of Variety – the Children’s Charity who have assisted with a significant vehicle modification to the family car to enable him greater mobility.
As a full-time carer for his son Jayden, who has the rare brain formation disorder, Lissencephaly, dad Michael said he always has something to worry about, but recently Variety – the Children’s Charity NSW was able to step in and alleviate some of his stress by granting a DMO Suit, Sandal Raiser and PEG feeds for Jayden.
At 12 months old, Bronnie Everingham noticed her son, Joel was not putting any weight on his feet nor showing the typical milestones for his age of trying to stand.
After consulting a paediatrician, Joel was diagnosed with global developmental delay, characterised by low muscle tone and told that he may never walk.